Rett Syndrome Resources
Rett Syndrome is rare, but the community surrounding it is strong. Find resources, organizations, and information to support individuals living with Rett Syndrome, and the families and caregivers beside them.
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Understanding Your Disease
Rett Syndrome affects each person differently, and understanding the condition is an important part of navigating life with it. These organizations help families, patients, and caregivers better understand Rett Syndrome – from early signs and symptoms to what to expect over time.
Rett Revealed
A Rett syndrome diagnosis can change every aspect of your family’s life. You don’t have to face the future alone. See Rett syndrome through the eyes of other families who are living their lives to the fullest.
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Patient Advocacy Organizations
This dedicated network of organizations are working to advance research, provide support, and build community for those affected by Rett Syndrome.
International Rett Syndrome Foundation
A leading private funder and host of the largest global gathering for Rett syndrome research—dedicated to empowering those impacted by the disease.
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Alzheimer’s Disease Psychosis Resources
Psychosis affects a significant number of people living with Alzheimer’s. Find resources to help patients, caregivers, and providers recognize the signs and navigate the disease with care.
Parkinson’s Disease Psychosis Resources
Hallucinations and delusions are a lesser known but common experience for many people with Parkinson’s. Explore resources to help you better understand and manage Parkinson’s Disease psychosis.
Acadia
Connect®
Acadia Connect® is a free program designed to help patients and caregivers access financial assitance resources and support programs that makes starting – and staying – on treatment easier.